If you have been wondering why there have not been too many big news from TMBN lately you have to wonder no more.
Many of the regular readers know that I kept talking about the "impact of blogs and social media on healthcare" and "developing a healthcare social media ecosystem" for a long, long, long time. So now is the high time to actually do something to make it happen.
The Answer is "Open Healthcare Manifesto" and it is here!
Now it is too big to fit into a blog post, so it is attached as a PDF file at the bottom (along with a press release) and what I will do in the blog post is just highlight a few key points to make you want to actually read and sign it. The post will not cover all details, if you want them please read the whole document.
First of all, why is it called "HealthTrain"?
In 1999, Cluetrain Manifesto made history by proposing a vision for how Internet communication will change business. This vision stimulated development of blogging technology itself. But healthcare is way more complex than "general business" and the stakes are human lives. Surprisingly, Cluetrain principles have not been "translated" for this industry. Till now. HealthTrain = "Healthcare Cluetrain".
Fine, you might say, but what does all this REALLY mean ?
In plain language, two things need to happen:
- Rise of "open media" means that the institutions, comprising the healthcare system have their work cut out to adapt to the changes. To see why, I suggest reading my prior post with a scary video about "grassroots transparency".
- Since we are talking healthcare, some sort of a new "integrity standard" is needed to help people sort through the junk that openness unfortunately tends to generate. Think of this as updating of earlier standards. Think "HONcode 2.0" .
OK, now where does the HealthTrain Manifesto fit in? It has a two-fold objective: take a first cut at the standard and use it to create an awareness campaign and stir debate within the industry.
Still think this is some kind of mumbo-jumbo?
Well, look at some of the people who endorsed the effort. People holding prominent positions in the industry:
- F. Nicholas Jacobs, CEO, Windber Medical Center & Research Institute
- Paul Costello, Executive Director, Communications & Public Affairs, Stanford University School of Medicine
- Greg Scandlen, President and Founder, Consumers for Health Care Choices
- Frank Hone, Executive VP, Ogilvy Healthworld
Take a look at the press release for quotes and highlights. Of course the full list of supporters (to date) is longer and is tilted heavily towards the practitioners of open media (bloggers). Namely:
Signed supporters as of 10/20/2006
- Stephen E. Beller, PhD, President/CEO, National Health Data Systems, Inc, http://wellness.wikispaces.com/Stephen+E.+Beller%2C+Ph.D, http://www.nhds.com and http://wellness.wikispaces.com
- Robert J. Lamberts, MD – Senior Partner, Evans Medical Group.
- Gary M. Levin MD, Coordinator, Riverside RHIO (IERHIO), http://riversidehealth.blogspot.com, Fellow, American Academy of Ophthalmology; Consulting Ophthalmologist, Kaiser Permanente
- Carol D. Kirshner, MS, CCRC, www.drivingintraffic.com, The Promedica Research Center, www.promedicarc.com
- Naomi Giroux M.Ed., RN, http://healthcaresurvivalkit.com, http://naomigiroux.com
- Matthew Holt, health care strategist and author, The Health Care Blog (www.thehealthcareblog.com).
- Nedra Kline Weinreich, MS, President, Weinreich Communications, author of “Hands-On Social Marketing” and Spare Change blog (http://www.social-marketing.com/blog/ )
- Dale Hunscher, IT analyst and strategist at the University of Michigan, author of Business Blogging for Healthcare Professionals, and health IT blogger (FutureHIT: http://hunscher.typepad.com/futurehit)
- Philippa Kennealy, MD MPH CPCC, President/Founder of The Entrepreneurial MD, www.entrepreneurialMD.com
- Barry Jacobs, Publisher, Cornerstone 1 Media, www.qualityconundrum.com
- James Littlejohn, health empowerment entrepreneur, http://www.aboynejames.co.uk
- Rita Schwab, CPCS, CPMSM author, consultant, in the field of medical staff administration, http://msspnexus.blogs.com
- Rick Holdren, Serial entrepreneur, who founded or invested in over 26 healthcare start-ups and was named as 2002 Center for Entrepreneurship & Innovation Mentor of the year
- Kim McAllister, RN, ADN, Registered Nurse and author, Emergiblog http://www.emergiblog.com
- Shahid N. Shah, CEO, Netspective Communications LLC (http://www.netspective.com) and healthcare technology blogger (http://www.healthcareguy.com).
- Marc Kashinsky, BS, MBA. Non Hodgkins (Mantle Cell) Lymphoma survivor, http://mlkashinsky.com
- F. Nicholas Jacobs, M.Ed, MPM, FACHE, http://windberblog.typepad.com, CEO, Windber Medical Center, www.windbercare.com ; wriwindber.org
- Fard Johnmar, MA, Founder, Envision Solutions, LLC, healthcare marketing communications consultant, www.envisionsolutionsnow.com
- Greg Scandlen, President and Founder, Consumers for Health Care Choices (www.chcchoices.org) and moderator of the HealthBenefitsReform list on YahooGroups.
- Amy Tenderich, journalist and author, DiabetesMine blog, at http://www.diabetesmine.com
- Paul Costello, Executive Director, Stanford School of Medicine, Office of Communication and Public Affairs, http://med.stanford.edu/
- Bora Zivkovic, A Blog Around The Clock, http://scienceblogs.com/clock/
- Jane Chin, Ph.D. President, Medical Science Liaison Institute, LLC, Managing Partner, Pharm Rep Clinic, and Founder, NakedMedicine.com
- Toby Bloomberg, Bloomberg Marketing, www.divamarketingblog.com and www.bloombergmarketing.com
- “Jack Friday”, PharmaGossip, http://pharmagossip.blogspot.com (under pseudonym)
- Frank Hone, Executive VP, Ogilvy Healthworld, author of the book "Why Healthcare Matters".
- Michael Ryan, Managing Partner, Executive Impact Group, http://www.execimpactgroup.com
- Sidney Schwab, MD, FACS; blog: "Surgeon’s blog" at: www.surgeonsblog.blogspot.com; author: "Cutting Remarks; Insights and Recollections of a Surgeon."
- Tony Chen, Director, New Business Development, Evanston Northwestern Healthcare and founding blogger of www.hospitalimpact.org
- R. Craig Lefebvre, PhD: President, Lefebvre Consulting Group, http://socialmarketing.blogs.com
- Ivo Drury MD MBA, President and Founder, Career Consulting for Physicians, http://www.career-consulting-physicians.com
- Lin Osborn, MA, Author, Director of Health Plan Navigator LLC., http://www.HealthPlanNavigator.com
Now what exactly is the "standard"?
Here I will only include the list of proposed principles, which are further discussed in the document:
- Openness
- Empowerment
- Conversation
- Empathy
- Trust
- Critical Thinking
- Guidance
- Control
- Credentials
- Transparency
- Privacy
- Anonymity
- Scientific Validity
- Conflicts of Interest
- Sponsorship
- Promotion
- Controversy
- Civility and Respect
This has been the product of a collaborative effort and I want to thank all contributors and reviewers.
Next Steps: Please take action!
HealthTrain needs further review, debate and support. Comment on it, blog about it and if you agree with these ideas add your endorsement. You can use the comment form below or register on this site and fill out the HealthTrain form in your member profile.
When linking to this post please either use this shortcut URL: http://www.healthvoices.com/manifesto or install a web widget with logo that you can see on top of the right sidebar. Get widget code here: http://www.healthvoices.com/widgets
Thank you for sharing these news with your friends and collegues
Final note. HealthTrain ideas will be discussed in depth at the first Healthcare Blogging Summit 2006 on December 11 of this year in Washingoton DC. Hope to meet you there!
by your post: you seem to be saying that you won't see a specialist unless someone else is paying for the privilege (or subsidizing it). Is this, in fact, the case?
I think you've also committed a logical fallacy: taking your own specific case, and then assuming that everyone else who has one of these "rare conditions" is in the same boat. I wonder if you could substantiate that for us?
Finally, it strikes me as counterproductive to conflate "rare" with "fatal."